Big day for Mr.Steele. The Milrinone was turned off! The next week will be his true test about heart function and true strength of his own dtermination to accomplish another major hurdle in his journey towards getting home. So, here we are again a big test for his change in plan if possible.
The sliver lining is this. Steele can go back on the Milrinone and continue his heart transplant path. Although, his journey is testing this path even as I write these words. I have been exposed to many families with multiple children with heart problems at the same time. I am not allowed to share their stories, but let me tell you this, it is truly amazing what our bodies can do to fix our physiology.
Family comes first & never loose hope that you will stand up and fight. This is the hard spot as a parent. Will your child fight or choose another path?
Rahcel, Ryleigh, and I went out on a nice dinner to celebrate one more small victory in Steele's favor towards recovery which was recomended by our medical team.
Peace,
-B
SO exciting you guys!! We needed some good news tonight! So inspiring. Steele is just a wonder, as are you. Hooray for a celebratory dinner; to say you deserve it is a gross understatement. Love you guys!
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